SaludConectaMX: Lessons Learned from Deploying a Cooperative Mobile Health System for Pediatric Cancer Care in Mexico

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Authors Jennifer J. Schnur, AngΓ©lica Garcia-MartΓ­nez, Patrick Soga, Karla Badillo-Urquiola, Alejandra J. Botello, Ana Calderon Raisbeck, Sugana Chawla, Josef Ernst, William Gentry, Richard P. Johnson, Michael Kennel, JesΓΊs Robles, Madison Wagner, Elizabeth Medina, Juan GarduΓ±o Espinosa, Horacio MΓ‘rquez-GonzΓ‘lez, Victor Olivar-LΓ³pez, Luis E. JuΓ‘rez-Villegas, Martha AvilΓ©s-Robles, Elisa Dorantes-Acosta, Viridia Avila, Gina Chapa-Koloffon, Elizabeth Cruz, Leticia Luis, Clara Quezada, Emanuel Orozco, Edson ServΓ‘n-Mori, Martha Cordero, RubΓ©n MartΓ­n Payo, Nitesh V. Chawla arXiv ID 2408.00881 Category cs.HC: Human-Computer Interaction Cross-listed cs.CY Citations 5 Venue CSCW Companion Last Checked 4 months ago
Abstract
We developed SaludConectaMX as a comprehensive system to track and understand the determinants of complications throughout chemotherapy treatment for children with cancer in Mexico. SaludConectaMX is unique in that it integrates patient clinical indicators with social determinants and caregiver mental health, forming a social-clinical perspective of the patient's evolving health trajectory. The system is composed of a web application (for hospital staff) and a mobile application (for family caregivers), providing the opportunity for cooperative patient monitoring in both hospital and home settings. This paper presents the system's preliminary design and usability evaluation results from a 1.5-year pilot study. Our findings indicate that while the hospital web app demonstrates high completion rates and user satisfaction, the family mobile app requires additional improvements for optimal accessibility; statistical and qualitative data analysis illuminate pathways for system improvement. Based on this evidence, we formalize suggestions for health system development in LMICs, which HCI researchers may leverage in future work.
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